The MND Population Register for England, Wales and Northern Ireland aims to collect information about every person with MND in the UK.
Having accurate, complete information about who has MND is important so that researchers can:
work out how the disease is changing over time
check if resources are concentrated in areas with lots of people with MND
analyse geographical risk factors can be analysed at a country level
ensure information about disease progression will be more accurate and applicable to all people with MND.
Your information will be stored securely on computers owned by King’s College London and Oxford University.
Your personal information will be encrypted when it is entered on to the website and will only be viewed by people within the MND Register team and your care team.
Information will be gathered from a range of sources to ensure that we include everyone in the Register.
You can be assured that the information you enter on this website will directly contribute to the MND Register research project.
For more information on the MND Register please read the
Patient information sheet