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MND Register

MND Register for England, Wales and Northern Ireland | Registration

Sign up for the project

Registration to the project involves two steps: consent and basic details check, followed by setting up account information.

Please read the information in the patient information sheet before consenting. You can view a PDF of this using the link below. We have also provided a copy of the consent you provide so you can download for your records:

If you have any questions please see the contact section for details of how to get in touch.

Project title: MND Register for England, Wales and Northern Ireland

Consent form (version 3, 22/01/2019)

Please fill in all fields below to sign up.

Your details - step 1:

Enter your first name as it appears on official documents for example, passport, birth certificate

Enter your last name as it appears on official documents for example, passport, birth certificate

Enter month in full. People younger than 16 can't sign up.

The year you first experienced weakness, speech problems, or breathing difficulties. Please enter the year these symptoms started as told to your doctor

Please enter the full post code of where you live
Please enter whether you were male or female at birth

Please enter the full name of the person who provides your medical care.

Please choose the name of the hospital or trust that provides your care. If they are not on the list please leave it as 'Select location' type into the box below